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My 2 year old Nephew was born with 2 severe birth defects the most known one is called Prune Belly Syndrome lack of adominal muscular development, leaving a bloated prunish appearnish. Quimm's other condition effects the size and developement and function of his colon and large intestines. He is on TPN(Total Paternal Feed 14 hours a day) very hard on his liver with the direct feed. Produces very litte waste material. Eats orally limited enjoyes it will cheer and fist pump after each bite. Quinn walks, carries a back pack with the needed pumps tubes and bags on his back, will walk around the room stop and look up at you and wonder why you are not cheering and appaulding his achievment. When he was born the Doctors told his parents he would not live a week, there best bet was to just go home and leave him there to die, or maybe take him home so he could die amongst his family. Today Quinn is a happy tempertantrum throwing 2 yearold, who needs extra medical care to eat and live but has a very "normal" life of love laughter and play. He was admitted last night to C. S Motts Childrens Hospital at University of Michigan for a Blockage in hi Large intestine, 2 Months ago His parents pointed out a mass/blockage in his small intestines to the doctor, it was pushed aside yet here it is now in the large intestine as a blockage that needs to pass before quinn can began to gain weight once again. the mass was pointed out a number of times before it reached the current location and nothing was done. Now it is problen. Quinns parents are feeling rather fustrated that they pointed out 2 months ago and nothing was done to preventi it progressinto a problem. They are askin what to when the Mwed pros wont listen