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Posted

I want to thank you 4 having this place to vent. This is not an easy situation at all. I moved in with my uncle about 5 yrs to help him, it didnt work out to well for me he has a little mean strick, moved out sort of for 8 months was staying at my gfs and still paying him rent for he needed my help. MOved back in its only 7 day days. A few days after I moved in we find out he has a medical condition Hydrocephalus & cervical stenoisis Hydrocephalus is water on the brain we all have that but his is not working properly as a matter of fact alot of people who a diagnoised with demtia or altimers really have hydrocephalus.When he first told me I didnt beleive him I just thought it was his way of getting to me using my compassion. Told my brother he felt the same way I did. WEnt on the pc and looked it up. He really only has me...I told him not to worry it would all work out. But now I dont know. He came home from work which he is having a hard time keeping it.He was going shopping with his friend be she is way younger then him and her friends came around and she went with them, same thing he would of done when he was her age.asked me to go with him I said not tonight. 2 days after I came back to his place I came down with a really bad cold was not going out shopping this evening, he can make dinner with what he has in the house..He came into my room, hardly ever knocks and waits for me to say come in or wait.we get into a fight i can barely speak im so sick, the point is he got so mad i can see he was restraing himself from hitting me..My gf warned me this could happen..hes not a violent person, then he comes more into my room falls on the floor on his knees and starts to shake now this scared me I told him to calm down...etc....I wonder if this was a cant think of the word schizer that's the word spelled wrong. His consultation is mid jan if he's smart he will have the surgery asap. I just dont know if I can handle it taking care of him but he has no one alse so i try. I have oviously put his name in the temple. This condition is working fast in him...I did think of erasing this but it did make me feel some what better.I feel like Im going to go to hell well maybe not hell but not where I want. Living with him has always been bad for me emotionally. Its just a very hard road that I dont think I can handle, so this makes me feel like a big failure.

Posted

1) Doctors ALWAYS say to come in if things get worse.

2) Things have gotten worse (he's becoming violent, is suffering from fainting &/or seizures)

3) Take him to the hospital.

Next time... Don't wait.

Every time something happens... Take him in immediately.

Doctors can't know things are getting worse, if you aren't coming in.

They can't do anything (meds, o2, observation, etc.) if you wait for a consultation a month from now.

Something that may be mild enough to wait, can turn very quickly into an emergent situation where you need immediate medical care.

Of he collapses again, phone 911.

If he refuses to go with you during another attack (but hasn't collapsed) call 911.

If this is affecting his brain (and it is) it is affecting. His judgement.

Which means you no longer listen to him saying he's fine.

YOUR judgement is unimpaired... Call 911... And speak with the EMTs & ER docs to let them know (neuro patients almost always gloss over OR ARE UNAWARE of the issues at hand).

Q

Posted

Thank you sister Quin. I hope I will be able to deal with it. I didn't even think of 911 or taking him to the hospital I guess I was so schooked

Posted

I agree with Quin. You need to get him back in when the episodes happen. Are you going to his doctor's appts with him? If not, start, if he will allow it. If not call his doctor when these episodes happen. It might be that January is too long to wait.

Posted

I agree.

I also want to say this - caring for someone full time is HARD - I know this from experience - I have been caring since 2008 for first my mother and now my best friend - if you need a shoulder to cry on or someone to share experiences please PM me!

Posted

that I needs someone to care for me.that I have a hips injection in 2008 and 2011 my first Dr. was a Ryan Snyder and he send me to another Dr. Boyd Crockett for the hip injections it was at the Bone & Joint Center in Springfield,Mo. and Dr. Snyder was leaving his practice at the Bone & Joint center in Springfield,Mo. and I have news Dr. Shannon L. Woods I been with the Dr. Woods for a long time.:)

Posted
I want to thank you 4 having this place to vent. This is not an easy situation at all. I moved in with my uncle about 5 yrs to help him, it didnt work out to well for me he has a little mean strick, moved out sort of for 8 months was staying at my gfs and still paying him rent for he needed my help. MOved back in its only 7 day days. A few days after I moved in we find out he has a medical condition Hydrocephalus & cervical stenoisis Hydrocephalus is water on the brain we all have that but his is not working properly as a matter of fact alot of people who a diagnoised with demtia or altimers really have hydrocephalus.When he first told me I didnt beleive him I just thought it was his way of getting to me using my compassion. Told my brother he felt the same way I did. WEnt on the pc and looked it up. He really only has me...I told him not to worry it would all work out. But now I dont know. He came home from work which he is having a hard time keeping it.He was going shopping with his friend be she is way younger then him and her friends came around and she went with them, same thing he would of done when he was her age.asked me to go with him I said not tonight. 2 days after I came back to his place I came down with a really bad cold was not going out shopping this evening, he can make dinner with what he has in the house..He came into my room, hardly ever knocks and waits for me to say come in or wait.we get into a fight i can barely speak im so sick, the point is he got so mad i can see he was restraing himself from hitting me..My gf warned me this could happen..hes not a violent person, then he comes more into my room falls on the floor on his knees and starts to shake now this scared me I told him to calm down...etc....I wonder if this was a cant think of the word schizer that's the word spelled wrong. His consultation is mid jan if he's smart he will have the surgery asap. I just dont know if I can handle it taking care of him but he has no one alse so i try. I have oviously put his name in the temple. This condition is working fast in him...I did think of erasing this but it did make me feel some what better.I feel like Im going to go to hell well maybe not hell but not where I want. Living with him has always been bad for me emotionally. Its just a very hard road that I dont think I can handle, so this makes me feel like a big failure.

The next time he goes to the doctor go with him and ask the doctor about having shunts put in your uncle's brain. They are tubes specifically for this problem. I had a companion on the mission who had this. He was born with the same condition so at birth he had the tubes put in and has never had a problem with the hydrocephulas.

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